Saturday, 9 June 2012

The story so far... (Part 2) - MRI Scan and biopsy

I arrived back in the UK on Sunday the 13th of May 2012. The following day I went straight to my GP who referred me to the Orthopaedic department at the Poole hospital. I have to admit the Hospital was a bit disorganised. I waited in the waiting room for about 2 hours, then a nurse took my blood and temperature. I was also told that I have been put on a waiting list for an MRI scan which most likely was not going to happen until the next day. They said they were going to admit me so I would stay the night as I had a slight temperature and it was more likely to get the MRI scan if I was there. At around 5pm I ended up getting the MRI scan but I still had to stay at the hospital as they wanted to keep an eye on me. I waited anxiously for the results but I was told that the scan had to be sent off to Stanmore Orthopaedic hospital in London for the bone specialists to have a look at them. I was told that the MRI scan showed up two 'pockets' (tumours) which were growing around the infected bone and a biopsy could not be done without the specialists permission in case the biopsy caused it to spread or aggravate it. The scans were also sent to the Oxford University cancer specialists for analysis. Unfortunately none of the consultants who looked at my scans could conclude what the scans showed and decide if I should go ahead with the biopsy. I had to wait 5 days - till Friday, when the consultants at Stanmore had a meeting and discussed my case.
This gave me 5 days of endless googling of all the big words from the MRI and CT reports and the possible outcomes. These included different sarcomas, bone marrow cancers etc. It was all pretty scary and grim and I would highly advise NOT to Google anything until you know for certain what the condition is and also to use reliable websites and do not browse through forums.
I remember waiting nervously all day on Friday the 18th for my phone to ring but come 4pm, I still didn't receive anything. I then decided to phone up the Stanmore hospital myself and try to get through to the right department. To my surprise I managed to get through to a really helpful person who found my case really quickly and told me that an appointment had been booked for me for to have a biopsy the following Wednesday. The nurse I spoke to at Stanmore was really honest and said that basically they were now looking to find out what type of cancer it was and they were ruling out a possibility of an infection. She said that it was most likely a lymphoma. I then proceeded to Google lymphoma and I was relieved to find out that the success rate was 90-95% which made me really happy and not worried about the cancer inside me. I wanted to concentrate all my energy on getting better and getting on with treating it. Although I was worried, I really looked forward to Wednesday to having the biopsy as I would finally find out what exactly has been causing me this pain.
I woke up nice and early on Wednesday the 23rd and arrived for my 7am appointment. As I stepped out of the door, I remember turning awkwardly as i stepped down which in turn made my 'hip' click, just like when you click you fingers. That was the most horrible feeling and instant pain which also felt like I was winded and I struggled to breathe. The pain remained for about 15minutes and it slowly went away. I just remember the pain being unbearable for a long time but thankfully it went away quicker than I thought. The day at the hospital was very long. What I was not aware of is that I actually was not due to go for the biopsy until 2pm so I had to wait around for 7 hours in a dull room full of other anxious patients waiting for their biopsy. I was luckily under general anaesthetic and local  anaesthetic during the biopsy so I woke up about 3pm and by 4pm I was ready to go home. I did not feel any pain and I felt like it was done really quickly. The biopsy also included another CT scan. I was told that I would not get the results for 7-10 days so I wasn't expecting them until the end of next week. To my surprise I received a phone call on Friday the 25th that an appointment has been booked for me to get my results on Tuesday the 29th. I was initially excited which was then followed by anxiety. I just wanted to know what it was so I could get on with treating it as I was getting sick of taking painkillers as they were just masking the pain and nothing was happening about the growth on and inside my pelvis. The next 5 days felt like the longest 5 days of my life and I ended up spending it with my friends as it was the last weekend I would enjoy myself without the care or worry of knowing what was exactly was wrong with me...

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